Little Lad Raises $1M To Help Research Best Mate’s Incurable Disease

By : Sam RidgwayTwitterLogo

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ad 154847526 Little Lad Raises $1M To Help Research Best Mate’s Incurable Disease

If you look up the term ‘best mate’ in the dictionary, you will find a picture of 8-year-old Dylan Siegel. Because what he did for his friend is the true meaning of friendship.

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When Jonah Pournazarian was diagnosed with a rare, incurable liver disorder, Dylan fronted an awareness campaign and raised $1 million for his best pal.

The Philly kid was just 6-years-old when he had to deal with the traumatic news that his best friend was one of only 500 people in the world with glycogen storage disease type 1B, a disease that turns glycogen into glucose, rendering Jonah unable to regulate blood sugar levels

ad 154847554 Little Lad Raises $1M To Help Research Best Mate’s Incurable Disease

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So what did he do when he found out? Started writing a book to finance research for it, of course And not only did he complete Chocolate Bar Book, he sold over 25,000 copies of it spanning 60 different countries, finally reaching the $1 million mark this month.

As a result of the amazing achievement and money raised, a research team in the University of Florida have been able to hire a new geneticist and finance studies resulting in new gene-therapy treatments.

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Brilliant stuff. Dylan, you are a true hero. You can donate to the cause here and cop yourself a book in the process.

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