Girl With Rare Disorder Can’t Have Sex Without Popping Her Hip

By : Ben HaywardTwitterLogo

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A teenager who suffers from a rare syndrome has revealed that she can’t have sex without dislocating her hip.

Darcey Kelly, 19, has Vascular Ehlers-Danlos syndrome – a condition which mutates her collagen, meaning her joints are especially loose and regularly slip out of place, reports The Mirror.

The teenager’s joints can dislocate up to 20 times a day and the first year English student has to have a liquid diet – to avoid her jaw locking – and struggles to open bottles without dislocating her wrist.

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However, her most embarrassing moment was the first time she had sex with her boyfriend – and her hip popped out of its socket.

She said:

I was trying to go for it and then all of a sudden I heard a loud crack. He didn’t hear it but he saw I had this contorted face of pain like I looked really disgusted.

I didn’t want to hurt his ego so said ‘um can you give me a minute’ and I hobbled over to the bathroom to pop it back in. And then we went back to it.

Although the illness is hereditary – also affecting her siblings – Darcey has the worst of it.

Her sister is a circus performer and has just broken the world record for the furthest distance shooting a balloon using her feet and her brother is a stuntman.

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However, Darcey fears that she’ll struggle to hold down a full time job when she leaves university and has been told that her life expectancy could be limited to between 35 and 40-years-old.

But she remains incredibly positive despite her illness:

There was a time I was telling my friends about how I dislocated something and I was laughing so hard about it that I dislocated my jaw.

You have to joke, it’s so much easier.

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But people don’t always understand her condition. Last year she was visiting a hospital with her mum when a woman shouted at her for parking in a disabled bay.

“This woman called me out and said that I’m not disabled and I’m a disgusting person,” said Darcey. “It’s happened quite a few times and I feel like people need to understand invisible illnesses.”

Darcey is speaking out about her disease to raise awareness about illnesses – like hers – that are not always obvious to other people.

If you or someone you know is affected by Vascular Ehlers-Danlos syndrome – or for more information – you can visit Ehlers-Danlos Support UK.  


The Mirror