Girl With Rare Disorder Can’t Have Sex Without Popping Her Hip

By : Ben HaywardTwitterLogo

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darcey1 Girl With Rare Disorder Cant Have Sex Without Popping Her HipSWNS

A teenager who suffers from a rare syndrome has revealed that she can’t have sex without dislocating her hip.

Darcey Kelly, 19, has Vascular Ehlers-Danlos syndrome – a condition which mutates her collagen, meaning her joints are especially loose and regularly slip out of place, reports The Mirror.

The teenager’s joints can dislocate up to 20 times a day and the first year English student has to have a liquid diet – to avoid her jaw locking – and struggles to open bottles without dislocating her wrist.

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darcey3 Girl With Rare Disorder Cant Have Sex Without Popping Her HipSWNS

However, her most embarrassing moment was the first time she had sex with her boyfriend – and her hip popped out of its socket.

She said:

I was trying to go for it and then all of a sudden I heard a loud crack. He didn’t hear it but he saw I had this contorted face of pain like I looked really disgusted.

I didn’t want to hurt his ego so said ‘um can you give me a minute’ and I hobbled over to the bathroom to pop it back in. And then we went back to it.

Although the illness is hereditary – also affecting her siblings – Darcey has the worst of it.

Her sister is a circus performer and has just broken the world record for the furthest distance shooting a balloon using her feet and her brother is a stuntman.

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darcey2 Girl With Rare Disorder Cant Have Sex Without Popping Her HipSWNS

However, Darcey fears that she’ll struggle to hold down a full time job when she leaves university and has been told that her life expectancy could be limited to between 35 and 40-years-old.

But she remains incredibly positive despite her illness:

There was a time I was telling my friends about how I dislocated something and I was laughing so hard about it that I dislocated my jaw.

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You have to joke, it’s so much easier.

darcey4 Girl With Rare Disorder Cant Have Sex Without Popping Her HipSWNS

But people don’t always understand her condition. Last year she was visiting a hospital with her mum when a woman shouted at her for parking in a disabled bay.

“This woman called me out and said that I’m not disabled and I’m a disgusting person,” said Darcey. “It’s happened quite a few times and I feel like people need to understand invisible illnesses.”

Darcey is speaking out about her disease to raise awareness about illnesses – like hers – that are not always obvious to other people.

If you or someone you know is affected by Vascular Ehlers-Danlos syndrome – or for more information – you can visit Ehlers-Danlos Support UK.  


Credits

The Mirror

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